Do not go gentle into that good night,
Old age should burn and rave at close of day;
Rage, rage against the dying of the light.— Dylan Thomas
I have witnessed only two deaths. They were not good. My mother was whisked off against her wishes to die in a hospital and to be subject to an unnecessary autopsy she had been strongly against. We all gathered ’round to witness her struggle, her laborious gasping for yet another breath. I did not have a sense that giving her extra oxygen through her nostrils eased her passing. (This had been the sole reason my father chose to remove her from our home where she wished to die. Dying people have difficulties breathing. Duh.)
I described the recent death of my father in the previous post. It was a horrible experience for me, and infinitely more horrible for him. I would not wish it on my worst enemy. Trusting the system, or for those with caring children, trusting that they will somehow manage to give you the good death we all deep down hope for… is foolish. The only person I know who had a good death was my grandmother. Still well, she dozed off one afternoon while her daughter, my aunt, was puttering in the kitchen nearby. And then she was gone. A lucky woman. But one can hardly bet on such luck.
Those experiences jolted me into a close examination of my own wishes and eventual options. I wrote a while back about ecologically sane disposal of the body. Since then, my final choice has become clear. I walk away. If a few of my remains are found — and I would be delighted to become food for one of the noble beasts, cougars or vultures if in America, and jackals or bears if in Europe — then I want them wrapped in a simple shroud, placed in a shallow grave lined with compost, with an apple tree planted over me. This of course goes against many laws in many places, but discreet action on private land remains a viable option everywhere. (There is yet another way, much simpler. Swimming out into the ocean. But I’d rather grow into an apple than a jellyfish.:)
Or perhaps by then there will be orchard cemeteries, and if I should have the misfortune to die in bed, that too would be lovely, my body nurturing a fruit tree the living could come and enjoy. And for a funeral? A simple horse-drawn cart, with a brass band playing the songs that sent generations of my ancestors to the next world, that would be the cherry on top.
I struggled mightily with the proper disposal of the dead, but it turns out that’s a simple problem. What about the dying itself? That’s where the real complexities enter in, and that’s where this insane world we live in makes things really difficult for those who would rather skip the usual: institutionalization, prolonged misery with one’s faculties radically diminished and one’s self-determination gone, often dying amidst strangers.
There are several issues that need thinking out, well prior to one’s actual need. Pain medications in an age of moral panics about certain drugs. Reliable lethal doses and access. And then, the most difficult one of them all: how to handle the fear and existential dread that falls upon those whose mortality suddenly ceases to be, um, theoretical. When I was told twelve years ago that I was dying, I was not only grief-stricken, and maddened by the rude and callous way the doctor handled the situation, but I also suffered from the realization that I was completely unprepared for… well, for what I am now calling the good death. I did have the time. I had no resources. I called the Hemlock Society for advice. They told me that the hospice folks leave plenty of morphine behind as they care for you. This is, I suspect, no longer true. Well. As it turned out, I used the time the doctor opined should be taken up to set my affairs in order to save my life instead. But that is another story, and another post.
So I was given a second chance for a rethink. While I believe that suicide is profoundly wrong for reasons too numerous to mention, the idea offers itself that to slightly speed the scythe that is already swooping down… calling it suicide seems a misnomer. It’s more of the last act of exercising the gift of choosing we were given at our birth as human beings. Many dying people refuse to eat — and nobody calls it suicide. (But really, isn’t starving to death, well, a somewhat sub-optimal way to go? Just sayin’….) If it is a kindness to ease the suffering of animals, why must humans endure the worst, at the mercy of often unmerciful happenstance? And being childless, I cannot console myself with idyllic pictures of a loving family gathering to say their goodbyes. It seems to me that when one’s life is done, and all that remains is waiting for the grim end, the kindest thing for all concerned is to make those last months as grimless and meaningful as possible.
I have been reading Michael Pollan’s latest: How to Change Your Mind. It follows his adventures with certain currently-forbidden substances (all hallucinogens, in his case) that he missed out on as a young man. One of the things the book describes are the scientific experiments, quite well corroborated, that demonstrate how the existential dread of dying can be substantially eased or eliminated by guided psychedelic experiences, enabling the person to make a spiritual turning that reframes the death that is coming. I remember when a dear friend was slowly dying of recurrent ovarian cancer — her last year spent being abused by one failing chemo after another, then the cold announcement from the doctor, and then the endless waiting… waiting… waiting… lying in front of television, resentful of the cruel blow of fate, and of death tarrying so. Bitter, too, against the Catholic faith she felt had let her down. She could have used help. But we were clueless.
Why not, instead, refuse heroic measures that swell the GDP with their false “palliative” promises and opt for experiences that bring one’s last days full circle into the meaning of it all, in the largest possible sense? This intimation of meaning which we can only guess at, but which is, experientially, within reach? For me, roaming the wildish lands and communing with critters (human and non) I have loved all my life would come first. And second, I would wish to have available to me all the substances given to us by God-Cosmos-Gaia exactly for the purpose of easing our pain, experiencing parting pleasures, expressing the love we feel without the usual restraint, seeing the meaning of our life with fresh eyes, and finding strength to face the beckoning transformation with grace.
Which leads me off on an exploration.
- What are the best ways to deal with the pain that often accompanies one’s last months– and which, in its infinite unwisdom, this culture stigmatizes and prohibits — allowing you to walk into the proverbial hills despite your bad back and your bum ankle or the cancer gnawing at your insides? When my mother was dying, my father — being in the cancer research business — pulled some strings to obtain for her what in those days was the most effective way to deal with severe pain. This Brompton’s Cocktail (then commonly available behind the Iron Curtain) was made up of morphine, cocaine, heroin and alcohol. It is still illegal today. The mix was adjusted to the needs of the patient — he or she could choose to be more or less alert, more or less social. Why do we put up with a medical system that puts politics above patients’ needs?!
- What is the best way to speed the scythe as you can walk no more, and wait in the hills for the blessed scavengers to transform your death into new life? The internet is vague about the dosage (maybe 300 mg of morphine might be enough; but what about a person whose previous months had included plenty of pain medication?). We need expert guides who can advise. And we need doctors who will allow us to build up a cache for when the day comes, well in advance. I think I will mix mine into creme brulee…
- And finally, what is the best way to use those divine substances that grant us the mercy and vision that in normal consciousness would likely be unreachable? The peace beyond understanding. The rightness of Being. The rightness of Death. The hope for another adventure awaiting in the beyond. The deep gladness that one’s death serves life. A whole new gestalt in which the universe opens its arms to you and welcomes you home. This, as I understand it, the new generation of psychedelic researchers are focusing on. But they need not stop there! How about drugs given not to quell pain, but to suffuse with pleasure a body that no longer can do it on its own? What about pills or herbs that would bring happy, vivid dreams? What about hypnosis that would help the person relive the most meaningful days of their life?
If I am granted the foresight and the knowledge that the time has come, I will walk away into the wilderness to offer my body to the living. That too will require preparation and scouting out, depending on the season and my strength. I suspect it will take more than just putting on a backpack and heading west into the Rockies, as I had naively imagined. Maybe an old cabin might come in handy. After all, it could be winter. The very last adventure of this earthly life ought to be grand, don’t you think?
And when I am gone, the friends I have left behind will shield their eyes when a vulture or a raven flies overhead, and wonder if I am flying along.
December 23, 2018 at 10:10 am
Ironic how life-saving medical technologies have morphed into instruments of torture for the dying and profit for the practitioners. Ancient cultures often had more humane ways of facing death, though they sometimes appear barbaric on the surface. (Are you revisiting your response to the horror of the Dutch story at the top of your previous post?) My suspicion is that your questions will be taken up in earnest as Boomers age and force gerontology into focus. It’s long overdue. Hope we can apply some wisdom.
December 23, 2018 at 10:19 am
I started thinking about this almost twenty years ago, when I took a class on Death and Dying and wrote a paper on the Good Death…and a couple of years later, a neighbor suddenly died. I knew that in WV we were free to do things our way, so after we got his body back from the coroner’s we put it in a box a friend had quickly made, lowered it into a grave all the neighbors had dug–everyone stayed home from work and school to help, and by the time we lowered the box into the grave, singing Will the Circle Be Unbroken and Amazing Grace and reciting a Buddhist prayer, fifty people were holding candles, we got it done before the storm hit. It was so much more meaningful than the usual affair managed by a corporate funeral home! And cost the widow $0. She later told me, “I felt floated on the caring of those people…I didn’t know how I was going to go on without ted, but I knew I wouldn’t be facing it alone.”
So I wrote an article about this, to let people know they likely have choices, don’t have to be bulldozed into spending thousands of dollars so some professional can horn in and interfere with the circle of mourners drawing together around the hole the deceased has left. Almost got a bite twice–but the editors decided the subject was too grim.
For me the question is, if you’re dying of cancer, say, can you get your hands on some morphine or whatever to accomplish the send-off? And aside from that problem, if it’s Alzheimer’s, how can you deal with the fact that the point where it’s time to check out–when your life has little pleasure or meaning, and you’re an increasing burden–pretty much by definition comes when you’re no longer capable of making a decision…and asking someone else to step in is so fraught…
December 23, 2018 at 5:00 pm
From what I see based on the concentric circles of close friends and family, widening out to less well-known friends, friends of friends, and distant relatives, most people in America today live their last weeks and months, often even years, in various stages of slow-drip torture bordering on the medieval. (Brutus above is right on about that.) Usually due to going down the slippery slope of medical care for terminal diseases that’s rarely more than a long shot.
It’s just like a gambler irrationally hoping for a payoff in the face of odds stacked heavily against them, while failing to consider the far more likely resulting scenario of ongoing misery and impoverishment of so much else about life, the intangibles, that make it worth living in the first place. In one way it’s another form of the country’s addiction to quantity (in this case, time left) over quality. Not to mention our death-denying ethos, of course.
Part of this whole mentality, too, is our culture’s belief in “magic bullets” to “fix” things that are rarely fixable in that way. It starts with our approach to health decades before we die. Our failure as a culture to really do what’s needed to achieve true, active health — engaging in an ongoing practice and discipline of proper diet, exercise, sleep, lifestyle, etc. — sets us up for all the myriad and chronic health troubles that snowball over time and are now commonly faced as we age.
While there are no guarantees, when you read about the last days of people who did what it takes to be truly dynamically healthy their entire lives, in the majority of cases, it’s more often a fairly quick decline from a high plateau at the very end, rather than a long-drawn out nightmare of decrepitude and demeaning circumstances. (Scott Nearing, coauthor of “Living the Good Life,” would be a good example of this. Also, Jack LaLanne.) That doesn’t happen very often today, now that most of us sit on our butts most of our allotted days living a push-button existence and eating crap the whole time.
For someone who did it your way, see Wayne Wirs’ final post on his blog at hisname dotcom. He died in August of 2017, although the blog will likely still be up until August 2019 since he paid the hosting fees ahead a couple of years in advance. He was a van-dwelling nomad/mystic who’d traveled all over the U.S. during his years of RVing and van-dwelling. He’d also mapped things out well in advance — “tripwires” was his term — for when life would no longer be worth living. Once things got too bad physically, he drove to one of his favorite camping spots to take his leave surrounded by nature on all sides. The substance he accomplished the task with is cheap, humane, commonly available, and so far not illegal.
December 27, 2018 at 8:10 pm
Hi Vera. I’m so sorry for your recent losses.
I’m going through something similar, yet entirely different, painful in an entirely different way.
My Mom is demented, and my Dad is narcissistic. Neither of them would admit that they couldn’t care for her, but luckily (I guess), she had done a power of attorney about five years back. We executed it, and took her away from Dad and put her in foster care.
Now my Dad has vowed to shoot me if he ever sees me again, and my Mom refers to me as “that nice man.” (“Now, who are you again?” “I’m your son, Mom!” “I have a son?” “You have THREE sons, Mom!”)
So, I’ve managed to lose both my parents while they are still living.
Good to see you’re still blogging. I was digging through and organizing old email, and was reminded of Leaving Babylon.
December 29, 2018 at 4:14 am
I could write some platitudes, like:
Nothing is lost, nothing is in vain, we are part of the eternal flow of life.
Or: Life is short, so spend your limited time wisely.
Platitudes, but I nevertheless believe in them.
Are we reminding each other of our younger years?
I lost my mother with 14 and my father with 26. That makes a difference.
Good to see you still blogging. Keep going, and a Happy New Year!
January 4, 2019 at 2:48 pm
Mato, platitudes meant with feeling still carry a meaning… IMO. 🙂
I lost my mom at 28. She was so young! So sad to live a life without someone you want to hold conversations with as you age.
Happy New Year to all. I am betting on lots of surprises.
January 4, 2019 at 2:50 pm
Jan, good to see you again. I guess my dad was a narcissist and demented person rolled into one.
That is a hard row to hoe you got. May your mom not suffer overlong. Hugs.
January 4, 2019 at 2:55 pm
Thank you, Ward, for the blog. I will keep working my way through it. Although his trip wires, I don’t identify with, except the pain. Money and van?! For me, it’s my sight, and early but unmistakable show of alzheimers symptoms.
How did he die? I could not find it. Hemlock? Cheap enough, and sure. Bullets ain’t sure, and I’d hate to lie there in a pool of blood after a botched shot.
I read Scott Nearing lived to be 105 and then starved himself to death.
January 4, 2019 at 3:00 pm
I think I read your story. That was a beautiful sendoff. I am thinking of leaving some money to Earthaven to bury me that way. Or would your community be able to?
If you have a dread disease, the doctors have a freer hand with the morphine. But you have to start early to squirrel the stuff away. As far as I can tell, it does not age. Yeah, timing is of the essence. I have a friend in Paris, 91, blind, and suffered a terrible fall. She is a shut in now… but she told me this: I don’t want to live, but I don’t want to die either. I am thinking… that kind of inability to face reality is what gets people to die in institutions. Now, she still has all her wits about her. But the smallest thing can happen, and she’ll be shorn of her self-determination in a blink of an eye.
January 4, 2019 at 3:09 pm
Brutus, it’s so much about the money… I had no idea. Even the church whom I trusted betrayed me.
The Dutch have their horror ways of killing the obstreperous elders, and we have ours. That is what shocked me. Killing someone via antipsychotic zombification — well, someone might even say that’s worse.
The system is getting worse, not better. (Medical, I mean.) I am turning more and more to herbalism for my issues. My father was on about 10 different pills when I came to care for him, and 3 of them were against high blood pressure. His was low — it runs in the family. Then, when he was in the hospital before moving into the church facility, the church folks found out they were giving him insulin shots! My father did not have diabetes. And so the crazy wheel turns.
January 4, 2019 at 6:08 pm
Vera, Wayne Wirs did the deed by breathing helium. He said in his final blog post (written a few days before he died but published automatically a couple days afterward) that it just puts you to sleep. I did a little quick checking a few minutes ago — look up the term “inert gas asphyxiation” on Wikipedia for more info.
The way Scott Nearing’s wife Helen told the story (can’t remember which book or publication), he was deteriorating rapidly in his 100th year, and made the decision to go ahead and fast/starve to death, dying peacefully not long after his birthday. As I recall, he and Helen did a “spring cleaning” fast of 10 or 14 days every year for health maintenance, so for someone who had done it before, it wouldn’t have been regarded as torture.
In the past I did a lot of reading on fasting, and it’s said it eases the death process. (Actually, fasting refers to the phase, which can last several weeks, during which the body is autolyzing nonessential tissues. “Starvation” proper doesn’t begin until those are exhausted and organ tissue begins to be broken down.)
I decided to check my memory — not necessarily my strong suit — on Scott Nearing. Wikipedia says a couple of individuals have documented that he had a series of strokes and had spent some unspecified amount of time in a nursing home at some point, which Helen did not mention. Perhaps another legend bites the dust, or at least the legend of his final exit…
January 10, 2019 at 1:51 pm
Helium? Who woulda thunk! That is a creative way to go indeed. I think I still prefer opium…
Yeah, people work hard to bullshit others into creating legends, don’t they? Sad to hear it. I guess Helen was very invested in propagating the miracle of their life style… but to my mind, it was wonderful enough without spin.
January 10, 2019 at 8:45 pm
Yea, but your voice won’t sound as cool, which might be a nice way to be remembered, as Mickey Mouse or Alvin the chipmunk…
January 11, 2019 at 8:15 am
Huh? I don’t get the joke, Jan. Must be a slow morning here in Florida. 🙂
January 11, 2019 at 2:38 pm
This is your voice. This is your voice on helium:
January 14, 2019 at 9:38 am
Weird, man…
January 14, 2019 at 9:56 am
Hey, if you’re determined to go, at least with helium asphyxiation, you’ll go laughin’!
January 14, 2019 at 3:10 pm
Yikes. I guess it does have a point… 🙂
February 17, 2019 at 12:31 pm
Hi! I found your blog years ago, while googling Earthaven, and read it obsessively for a while, then drifted off. Today I came back, and found this post, and was reminded of the truly dignified dyings and burials I’ve witnessed at Earthaven. It’s my dream, too, to be buried directly in dirt, by people I love, and use my substance to grow a fruit tree.
I’m leaving a link to my own blog, in case you’re interested; I do feel a deep resonance with your spirit, and your quest: http://helenzuman.com/blog/.
February 17, 2019 at 2:48 pm
Every so often, I get a comment like yours, and it makes it all worth it. 🙂
Yes, Earthaven has risen to the challenge, with several elders and a small child dying there in the last several years. Now, they are teaching the art of dying-care and natural, DIY burials. Wonderful direction.
Here are a couple of links to their upcoming workshops:
Home funeral training
Directives
February 27, 2019 at 11:04 am
In this vein, you might examine the tradition of ubasute.
https://www.ancient-origins.net/myths-legends-asia/ubasute-0011538
I don’t know if you listen to Chris Ryan’s podcast Tangentially Speaking, but he has said a lot of profound things about death and dying and the beneficial use of psychedelics. His own father died this year after what I gather was a very drawn-out affair. IIRC, he mentioned the state of Colorado actually allows “sky burials”.
I’ve often used Micah True of my example of the best way to go. Here’s a moving tale from the New York Times: https://www.nytimes.com/2012/05/21/sports/caballo-blancos-last-run-the-micah-true-story.html?_r=3&pagewanted=all
Will write more later. Take care.
February 27, 2019 at 2:50 pm
I take it back, THIS is how I want to go: http://tywkiwdbi.blogspot.com/2016/10/euthanasia-coaster.html
February 27, 2019 at 8:39 pm
The story of Mikah True is awesome, riveting. What a life! It’s good to die where you love it. Still though, it was an accident, so I am not sure if it really applies here.
I looked up Tangentially speaking and got lost in endless podcasts about weird music, porn, and a number of other topics. I would really appreciate a link.
Ubasute sounds like abandonment. If the person chose… as I imagine I will, that would be a good way to go. If you bring some good drugs along…
I find nothing on Colorado sky burials. I did find one article on a pyre for the dead in Crestone. Polluting. There seems to be an experimental farm in Texas that follows decomposing human bodies over time. But in that climate, they are likely to mummify.
February 27, 2019 at 8:44 pm
LOL! I like roller coasters but not for the final dispatch. That is funny and creepy at the same time. Roller coaster and slaughterhouse rolled into one. Yish. De gustibus non est disputandum.
I wonder if the designer meant to append a Soylent Green factory at the end, but lost his gumption.
February 28, 2019 at 5:47 pm
A small announcement: in the age of shrinking freedoms, I found it necessary to add a Free Speech Zone pic to “About” this blog. If anyone knows how to hang a free speech icon on the home page, let me know. Yeah!
February 28, 2019 at 6:17 pm
Easiest way to do it would be to make a new post, write a brief sentence or two or short paragraph explaining things if you like, then insert the picture into the post just like you did on the About page. After that, in WordPress’ “Edit Post” screen for the post, click the “Visibility: Public/Edit” link at the upper right, check the “Stick this post to the front page” box, then click the OK button, and yer done.
February 28, 2019 at 6:38 pm
P.S. Ah, and then after clicking OK, of course, you’ll need to click the Update button below the “Publish” dialog section as well.
February 28, 2019 at 8:25 pm
Silly me, just remembered a better way to include the Free Speech icon on your home page. The above approach might be called the “clobber ’em over the head” method.” A less obtrusive, more tasteful way to do it, if you’re just wanting to put an *icon* on the home page like you said, would be to put an image widget at or near the top of the right sidebar. (From WordPress admin menus: Appearance > Widgets > Image.)
March 1, 2019 at 3:40 pm
Awesome. Done. The only thing I don’t see is how to center it. But that’s a minor issue. Thank you, my friend!
March 1, 2019 at 6:22 pm
No biggie — I’ll help you with the centering via email.
June 25, 2020 at 8:11 pm
Chad, my goodness, I just found this. Eeew! Figures… the designer does not consider how the passengers actually feel on their last journey. So… lecorbussieurish, don’t you think?
June 25, 2020 at 8:15 pm
Beautiful story. A good life’s ending, but not intentional, I gather.